• They were very impressed with the two PR programs that they visited here in the Southland. The kitchen and laundry set up allowing patients to practice ADL’s (activities of daily living) at Long Beach Memorial fascinated them. The high intensity exercise programs there and at Citrus Valley encouraged them to recommend more vigorous exercise regimes for their patients in Japan also. Since one of the visiting physicians had many patients with restrictive disease they felt fortunate to see how successfully Cinda Claprood, RCP, coordinator of rehab at Citrus Valley, successfully integrated these patients into her regular rehab program. All the patients that our Japanese friends met at the PR programs warmly exchanged greetings with them while lauding their rehab programs and the positive changes it made in their lives. They also toured the Rehabilitation Clinical Trials Center at Harbor-UCLA and met with Dr. Richard Casaburi. He gave these visitors an update in the latest research activities in the Rehabilitation Center, where new applications for oxygen therapy are being investigated.
  • The exchange wasn’t all one sided however. Our Japanese visitors showed us the Oxy-glasses popular with women in Japan. These are attractive glasses that cleverly conceal the oxygen cannula in the frames of the glasses. While this concept has been around for many years, their newest version was a big improvement on the older models. They also showed us a wrist watch oximeter made by Minolta. This small oximeter can store oxygen saturations for many hours in its memory making it a good choice for overnight oximetry as well as exercise.
  • But perhaps of most interest to all of us was their National Patient Society, "J-Breath", led by their president, Mr. Fooyama. He is also head of Information Center for Pulmonary Patients in Japan. Since he was a newspaper correspondent in Los Angeles for many years, he is a natural for this big job Making use of his excellent English, he would like to share information with patient support groups in America. We have many sister cities with Japan here in California, why not sister patient support groups? Both Citrus Valley and Long Beach Memorial patient clubs are very interested in networking with him. Several patients at Citrus Valley are already exchanging e-mails with Mr. Fooyama, sharing common problems, ideas and tips that will help everyone, regardless of nationality or language spoken!
  • Would you or your group also be interested in such an exchange of ideas? Maybe you would be more interested in networking with patients in Poland, England, Sweden, Indonesia, Norway, Canada or Israel? We communicate with patients from these areas. Are you as excited about this idea as we are? This could be the start of something big! How about it? If you are interested, e-mail us at perf@pacbell.net and we will see what we can arrange.