• NEWS
  • PERF Board of Directors is expanding
  • If you looked at distinguished names listed under PERF Board of Directors, you will see that we have added that of Janos Porszasz, MD, PhD. Does the name sound familiar? It should, since Janos, as he is known to colleagues and patients alike, is also our web master. Janos was an Assistant Professor at the Medical University of Pecs, Hungary when first recruited to Harbor-UCLA 1991. He was here as a Research Associate while completing research necessary for his PhD. In 1995, he returned to Hungary as head of the Department of Physiology and Ergonomics at the National Institute of Occupational Health in Budapest. Two years later, Dr. Casaburi visited him in Budapest and lured him back to Harbor-UCLA. Since then, he has had a faculty position at UCLA and is now Technical Director of the Rehabilitation Clinical Trials Center. He returned to the States with his lovely wife, Suzanne, also a distinguished PhD scientist, and his pretty daughter Judit. In addition to his scientific expertise, Janos is a fine musician and a professional level photographer. Whew. Can we pick them or can we pick them! Janos has always been a strong supporter of PERF. We are honored he has now made that relationship official. Welcome aboard, Janos!

  • 16th Birthday of PREP
  • We like birthday parties! We especially like birthday parties when they celebrate the success of one of our very favorite patient groups. July 9th marked the 16th Birthday of PREP, the patient support group at Mission Community Hospital, in Mission Viejo, California and what a gala celebration this was! The local Holiday Inn banquet room was bursting at the seams with almost 200 happy, chattering celebrants, non happier than Jim Barnett, RRT, RCP, their beaming leader. Jim told the audience he had the best job in the world; he actually got paid to do pulmonary rehab, a labor of love! With Jim's positive attitude as an example, it's small wonder that the faces of his graduates reflected his, with smiles on each and every one. Mary Burns was honored to again be a guest of this great group.
  • She is planning to show some of the many pictures taken there, at the next birthday party she has been invited to attend. That attendance will involve more than a one-hour drive down the freeway since it is all the way around the world in Tokyo, Japan! The J-Breath, a national patient support group, will be celebrating their 5th birthday. They are very interested in connecting more with American patients and have asked Mary to talk to them about this. A start towards this goal was made when Jim's group gathered to extend greetings to their Japanese counterparts by holding up a huge multi-colored banner reading KONNICHIWA. This is a greetings meaning something like "Good day". Mary planned to use "Konnichiwa" as the opening slide of her talk, but has just learned the Japanese party will be at night! With paint stained fingers she was heard to mumble something about next time sticking to a generic "Hi". Japanese patients are very interested in how American patients handle oxygen with work and play, yet still are motivated to enjoy life with COPD. They want to network more! If you have any ideas you would like to share with them, Mary would love to hear from you.

  • Independence Fund
  • Dr. Petty's adjustment to oxygen is about as good an example as you can find, though his problems are not due to COPD. While his physical activities have been sorely limited this past year there is nothing wrong with his enthusiasm or his ideas. They are as boundless as ever, as you could see by his Independence Donor campaign, over the 4th of July. He decided to be an "Independence Donor" giving $230.00, one dollar for each year of our Country's existence, as thanks for his improved health. He suggested that others who have benefited from Pulmonary Rehabilitation, oxygen, etc., and who also experienced the restoration of their personal freedom, join him. He wanted to celebrate with a gift to PERF, where this support would help others in their quest for freedom. How is this campaign going? So far, he has raised $3,000.00, much of it donated in his honor. Another $1,000 is pledged. Ever the optimist, Dr. Petty was aiming for $5,000, and who knows. He may yet reach his goal. We sincerely thank those of you who joined him in his celebration. This month that includes, Emily Hansen, Mary Ellen Weger, Bonnie McCarthy, Iris Patton, Philip Whiting, Jerry Gorby, John Raymond, Amy Walker, and Nancy Moore who joined previous donors and Dr. Tom Petty with their Independence Day donations. (We never cease to be amazed by all you good people!)
  • Adventures of an Oxy-phile by Dr. Petty
  • Being on oxygen 24/7 also inspired him to write his latest book, Adventures of an Oxy-phile. This 96 page booklet is crammed with information that every oxygen user should have available. Besides the scientific basis for LTOT (long term oxygen therapy), it contains Dr. Petty's personal adventures, beginning with his first studies of ambulatory LTOT in 1965. It continues with his observations "from the other end of the stethoscope" when he also became an oxygen user. Some of our readers contributed personal vignettes on their oxygen experiences. Various oxygen systems are compared in detail along with information you won't find in other books written for the layperson. Lots of pictures add to its appeal. It takes someone like Dr. Petty, on oxygen himself, to know what oxygen users want to know and should know. This is a book every pulmonary rehab program and support group should get for their library now, while they are available! Dr. Petty tells us that Puritan Bennett has 10,000 of these that they will distribute free. They are also available from the AARC (American Association of Respiratory Care), 9425 N. Mac Arthur Blvd., Irving, TX 75063. Phone 972-243-2272. Dr. Petty thinks that AARC is selling them for a nominal fee. Mostly, he is hoping these booklets can be widely distributed to meet their intended purpose of being informative, enjoyable and inspiring. Who else could better achieve this than Tom Petty!

  • Donations
  • Giannina Donatoni made a donation in memory of her father Jerry and to also What a very special gift for your mother, Giannina. We are touched. commemorate her parents' 50th wedding anniversary.
  • Gene Pirazzi also made a donation to honor the 50th wedding anniversary of Bob and Carolyn Hoffman.

  • Heliosfreedomtour
  • If you are following the story of cross-country progress of oxygen user Mark Junge, as we write this, he is in Salt Lake City, Utah. A fantastic accomplishment, Mark, and we wish you continued success!

  • Do you have a question about respiratory disease that has been bothering you? If so, feel free to write and ask us, either through our web site or by mail. We answer all of your letters.